In the spring of 2024, Canada’s Drug Agency launched its first open call for funding (through a Request for Proposals process) to support registry owners in Canada enhance and expand their registries to better support decision-making.
This funding opportunity is 1 of several initiatives we are leading to improve the collection and use of evidence to inform and support rare disease decision-making. Please continue to monitor this site for future funding opportunities. This work is done in support of the Government of Canada’s National Strategy for Drugs for Rare Diseases.
Overview
This time-limited funding opportunity runs until March 31, 2025, and is available to established registries that are actively enrolling and collecting data, and to new registries that are just starting to build their infrastructure. The RFP application process is twofold, whereby eligible registry owners are first invited to submit a Letter of Intent to apply. We will then invite select registry owners to submit a full proposal. Successful applicants will be notified on May 31, 2024.
RFP Questions and Answers
Anticipated Timelines
Funding Launch: March 27, 2024
Letter of Intent Deadline: April 10, 2024
First Notice of Decision: April 19, 2024
Full Proposal Submission Deadline: May 24, 2024, at 11:59 p.m. ET
Second Notice of Decision: June 14, 2024, at 11:59 p.m. ET
Work Commencement: June 21, 2024
Work Completion: March 31, 2025
Inquiry submission deadline: May 15, 2024